A household with two people suffering a neurological brain disorder… I have witnessed much. I soon realized we have to rethink our attitudes toward illness and old age. Above all, we have to stop the cruel practice of isolation.
I have been receiving your wonderful comments. They are very important to me and I value every one. Occasionally – rarely – a comment may get lost because of internet trouble. I feel very bad then.
I find your comments incredibly supporting. Thank you. I am sorry I cannot answer you individually. There is simply no time.
The only time I can write is in the morning when I have some help. And even then it is not easy. There are errands to run, important phone calls to take care of. Also if we had a bad night I try to sleep a bit.
As I´m writing this Shelly´s second meal is finishing. I can already hear the mucus coming up. This happens at the end of each feeding. The mucus has to be pulled out right away.
I hope to get some more help in the future. It would be nice to have a little more free time. Love to all of you, Anna
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